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Funeral

Monday April 22nd was my children’s first day back at school from April vacation. The morning routine of breakfast, teeth brushing, teeth mashing, snack packing, and hustling to the bus was back on.

Dan and I were late to our 10:30 appointment at St. Mary’s cemetery to select mom’s burial plot, and ours as well. We quickly selected a nice place in the middle with our plots facing each other. It oddly felt appropriate for Dan and I choose a place facing her after all that we had been through in the days and weeks leading up to her passing. However, it’s a bit sobering to select your burial plot before your 40th birthday.

That evening my uncle Steve arrived for the service on Wednesday. And so the discussions and differing views for her second memorial began.

Tuesday April 23rd, that morning I made breakfast and visited with Steve and enjoyed Leni and Matty for the day. Dan my husband was working from home that day too.

I finalized the readings gospel and hymns for my mother’s funeral service. Even through all of this nothing really seemed sad, just part of the process.

That afternoon, my husband and I actually had a meeting at my daughter’s school about her special education services. She has a Speech and Sound disorder. The meeting at 2pm, didn’t go well. I entered the room with condolences and left the room with condolences, but I only felt fury, feeling nothing meaningful had been accomplished for our young daughter. This feeling lingered over me through the days to come and still today. Despite this, I know that my daughter will get all she needs and I will be sure she does.

Following the meeting, Dan and I rejoined the family at home, I made myself a margarita to take the edge off. Aiming to recenter myself to my family for the evening, I enjoyed time outside with my kids the first day without rain in what seemed like months.

Once every one went to bed for the night with marching orders for getting up in the morning, I waited for my father to arrive at 11pm. We briefly visited over some wine and the retired for the evening just after midnight.

On Wednesday April 24th, I’m not sure I slept at all in anticipation of what the day had ahead. I just remember waking and getting myself ready for the day, and making sure my kids had a normal day. Neva asked me why I was all dressed up with make-up. Clearly this is not how she sees me regularly now that I am no longer a corporate killer. Explaining to her what we were going to be doing was hard. Her eyes welled with tears “is nana going into the ground?” I can’t recall what soft version I told her but I did not lie. My own tears spilled over as we comforted each other. I’ve mentioned before Neva looks a lot like me, but I think even more like my mother. Her big eyes, they draw you in, and when they are sad, it’s hard not to fall right in with her. I emailed her teacher later on the ride to the funeral home giving her a heads up that Neva might be more emotional that day.

I recall getting downstairs to see 2/3 of my kids eating breakfast Steve up and showered, but, still in PJ pants. Dan saved me from unnecessary nagging and said “we have to be there by 8:00am so you should change Fish Fish.” Steve was horrified, exchanged his a muffled chuckle of sorry and retreated to ‘his lair’ to change into his funeral attire. Meanwhile my father in law arrived in his best suit to take Neva to the bus, and later to be with us at the funeral home for visiting hours.

We arrived at the funeral home at 8:15am, Steve, Dan, and myself exited the car. I don’t know why I thought I’d have time to drink my coffee in the car, so I left it to sip later. As I got out of the backseat I noticed my fresh out of the package, Spanx pantyhose had a run in them by my right ankle.

Sidebar – this is the second pair of Spanx pantyhose I’ve had, that have done this during the inaugural wear. I don’t have long nails, or jewelry that would catch on them. I love Spanx, especially the leggings, but the pantyhose, WTF? Didn’t she build her business on this??? The most annoying part is the dress I was wearing I didn’t really need all the control support what have you, ugh. For $39.99 a pair, that’s a racket. Okay rant over.

The pit in your stomach when you’re getting ready to see someone in a casket, there is no other feeling. Let alone someone close to you in your family, like your young mother. I began to stress sweat like I was going to a meeting I was worried about the outcome of…

She looked like her beautiful self, and her nails looked great, I was happy I had painted them. Her dress was a pink and purple leopard print with long sleeves. I had picked it out at Nordstrom on Sunday April 14th. It was her style, with a nice scarf like feature at the neckline, and went perfectly with the orchid colored casket I had picked out a week before. The detailing on the handles also looked like the iridescent blue shell she had in front of her fireplace in her townhouse. Everything was in place, as she would have liked it. I had chosen that funeral home in part because she would have liked it. That sounds really odd to say, but it’s true.

Fr. Joyce did an amazing job with the mass. St. Mary’s is a big, old, beautiful stain-glass window church with a pipe organ and bell tower. Like something out of a movie, we entered, watched Fr. Joyce elegantly perform for mom, and the rest of us. The vocalist was exceptional and paired with the pipe organ, was only fitting for my mother’s final mass. My mother had been to mass in our church a few times before and for both Neva and Leni’s baptisms. Due to her troubles with her left leg prior to her illness, she wasn’t well enough to travel for Matty’s this last November. After Fr. Joyce beautifully performed the final prayers around my mother’s casket, we exited and proceeded to the cemetery.

It had been raining for days but the clouds had been held off from the day before so we had beautiful late morning sunshine to greet us there at the gravesite.

As we were ushered to our seats by Joe, the head of the funeral home, he quickly stepped out and began to curtly address his ‘dressed men’ about how the floral arrangements were being displayed around my mother’s casket. “The Nana arrangements go on the ends there are two Nana arrangements , why are they not on the ends. Now put that one in the middle. No! The Nanas are on the ends!!!” I tried not to giggle but I’m sure my mother was roaring with laughter. Again, I had chosen this particular undertaker because he was thoughtful, kind, professional and I knew he gave attention to every last detail. He did not disappoint.

Next, Matthew, the youngest of the dressed men began handing out red carnations for everyone to place on mom’s casket. Matthew could not have been more than 25 years old, and seemed to be the successor in training for the elder Joe. Out of the corner of my eye, I could see Joe moving back toward us, “Matthew! Matthew!Flowers go the immediate family first!!!” Poor Matthew had started toward the back of the line. He sheepishly made his way to me and then Steve, and so on… Never the less, we all got flowers. We then seated ourselves on those faux grass covered chairs that are at gravesites. Who thought of that? And why, to blend in? Shortly thereafter, Fr. Joyce haphazardly walked from his vehicle to us seated and standing at the gravesite. As I sat there, fighting giggles, I imagined my mom crying with laughter over everything that had just transpired. In my mind I could hear that infectious laugh of hers.

Once Fr. Joyce had performed once again, and said his thoughtful goodbyes to us, we laid our flowers on mom’s casket, I began walking back toward our cars.

What I had expected to be excruciatingly difficult moment, somehow, felt warm and humorous. Those moments of levity was in part somehow to my mother’s spirit channeling out to us saying, “I’m okay, smile, laugh, and remember, I’m in a good place.”

We then headed to Prezo the local restaurant we booked a private room for a meal post. It was nice to catch up with friends I had not seen since mom had been sick.

Once we wrapped up, our small group headed home to visit and see the kids.

The sun was shining so we took advantage of the patio with a fire and drinks. Watching the kids play and visiting with my husband, my uncle, and my father, had only a few a moments of ‘really’, but the day ended not like any other, but, not with the unbearable sadness I would have expected.

I didn’t take any photos the day of mom’s funeral. Here are just two of only maybe ten photos I have in total with my mom and dad. Thank you dad for being there for me, on a really difficult day.

Easter

Saturday April 20th, my mother passed right after midnight. Later that day after Dan and I had slept for few hours, my in-laws came by to watch the kids while we handled finalizing mom’s funeral.

We dropped off dry cleaning, then headed over to grab brunch at a local restaurant, Depot Street Tavern. Dan and I talked, cried, and texted those close to us to inform them of her passing. The food, drinks, and company was good. I was sad, in shock, and oddly at peace.

A trip to Target to get last minute Easter essentials for the kids, because, it had been far from my mind that week, and weeks prior really. Swimsuits were ready for pick up. That was always my mom’s tradition for me on Easter, and it has continued on as a tradition for my children.

By 2pm we were at Edward’s Funeral home to delivery my mom’s dress, jewelry, and shoes.
Wednesday April 24th was the earliest we could schedule her funeral mass. We finalized that, gave the okay for the local obiturary, and planned to meet at the cemetery on Monday morning to pick a burial site location.

It was an ordinary Saturday night with the kids, as ordinary as possible. Getting them ready for bed routine, making sure they were going to get sleep before the Easter bunny was coming.

By 8:00pm they were sleeping and I was handling the Easter spread while Dan folded the back log of laundry. We took our time, sipped drinks, watching something streaming on TV. By 10:30pm I saw Neva in the reflection of our living room window, I quickly turned and went to her to stop her from seeing the Easter loot. She was upset with blanket in hand, whining, “my ear hurts mommy, it feels funky.” Her ear was all red. I asked if it was aching, she said no, it just felt funky. “It feels like I have water in it that I can’t get out.”

I carried her up to our room, gave her some children’s Motrin and she settled into our bed with me. But, she didn’t settle. She flipped and flopped constantly. Half asleep, half awake, restless. The sound of the rain falling was subtle but seemed to be the only thing I could hear.. I didn’t really mind Neva flopping around, because my mind was with my mother, and listening to the rain. Neva was really unsettled. I turned myself to her and rubbed her back, but that didn’t do it. It was nearly 3am when she flipped herself on her back, took my right hand and placed it over her right ear and she stopped moving. She then immediately relaxed and fell asleep.

As I laid there, the only thing I thought of was it was my mother’s way of telling me she had heard everything I had said. That final week of her being sick, she had had her head turned to the left side, so her right side was up, and that was the ear that she would have been able to hear out of. Neva, told me the next morning her ear felt fine.

Waking up Easter Sunday felt weird. The girls and Matty were excited for their baskets. Then Neva and Leni put on their Easter dresses and I watched the Rosary and Easter mass on TV. I didn’t feel much like going to church on the busiest day of the year. Easter really is the Black Friday for people attending church.

Dan made a ham for us to eat and I did my best to be present that day for the kids. I didn’t feel much like anything. I would think the first holiday without a close loved one is always hard, it just maybe isn’t always the next day.

Our wonderful neighbors invited us for dinner and festivities that day. Dan took both the girls over for an Easter egg hunt, which I know they enjoyed. I just couldn’t go. It was mostly a dreary day outside, and I was feeling the same way. Megan, my neighbor, was understanding. My mother had died the day before, I wasn’t up for socializing.

As the day seemed to slowly come to a conclusion, I knew no holiday would ever be or feel the same. I felt sad, empty. Even when mom wasn’t there she enjoyed so much sending gifts to the kids, and Facetiming all of us. I know I’ll always feel she’s missing, watching, but missing.

Neva, Leni, and Matty Easter Sunday April 21, 2019

Holy Week

Wednesday, April 17th turned out to be a tough day. Not long after the morning nurses visit 9:30am, Mom’s body began it’s final betrayl. This started and continued until about 5pm on Thursday. It had by far been the hardest part of her journey.

She had stablized by about 6pm Thursday and stayed in a comfortable state through the night. While Dan made the kids dinner, I decided to file and paint mom’s fingernails one last time. She would want that.

Good Friday had arrived and from the struggle of the 18 hours, her blood pressure was unable to be read, and her oxygen levels depleted. We knew she was approaching her time to meet the Lord. We spent the day in prayer, and I held her hand, with the Rosary she had given me, keeping track of her body temperature.

We received a visit from the social worker Michelle, and had to opportunity to tell more stories with mom, and reassure her that we would all be okay when she was ready.

After the kids were fed, Naomi, her caregiver said good-bye one last time, and to all of us. After I gave mom her 7:30pm dosage of morphine and Ativan, I knelt beside her said, “I’m going to give you time to be alone if that is what you want, but just know I’m coming back. You’re in charge, I’m just here to make sure you are at peace.”

I went upstairs with my husband, had a glass of wine, and cried, knowing that time was very short. At 9:30pm, it was time for a dose of morphine, Haldol and for me to check on mom. I gave her the meds, and I got settled into my make-shift beanbag bed next to her hospital bed, and grabbed her hand. We had Catholic TV on to continue to watch the events for Holy week. The 11:30pm alarm goes off, next dosage for mom. Once I was sure both were safely administered, I settled back into the beanbags, and grasped a hold of mom’s hand again, Rosary clasped.

I was jolted awake, still holding mom’s hand, I looked up at her. She had passed. Her eyes, which had been closed since Thursday night, were ever so slightly open, looking down at me. She had a slight smile on her face. I looked at my phone in my hand, it was 12:03am. I yelled for my husband Dan to wake up. He got up, gently closed her eyes, and we cried. My in-laws arrived shortly to be sure our children did not awake for the next steps of this process.

Until the hospice nurse arrived to give the final pronouncement an hour later, I did not leave her side, or stop holding her hand. Soon there after, the funeral home arrived to prepare mom to leave. He let us have one last moment to say our good-byes. Dan and I gave her one last kiss on her forehead and I headed upstairs to take a shower. Dan went to the main floor to wait for them to leave so he could lock up and shut the lights out downstairs in what had become the nana suite. While I was still in the shower, he came in and said, “you won’t believe this. Right when they had moved her past the front door on the walkway, the front door swung right open, like a boss.”

We got little sleep. My daughter Neva came in to wake up in the morning we told her that nana had gone to heaven. After explaining we were happy she was at peace, and that she would live in our hearts, she headed downstairs to get breakfast with my mother- in-law. Almost immediately she came running back upstairs screaming, “Mom, the Angel tree is blooming!” I said, “I know sweetie, I knew it would.” The Angel tree is Cherry Blossom tree Dan and I planted after I had a miscarriage in September 2014. The baby would have been due April 2015, right when it blooms. It was a reminder of how losing that angel changed us forever, and always make us happy and renewed every year when it bloomed. I don’t think it’s a coincidence that today is when it began to bloom.

Losing my mother Deb today, who clearly was an angel on earth, and is one now in heaven, has and will continue to change Dan and myself in ways we never dreamed. I know that this experience will also have a lasting impression on our children as well, which will unfold in days, weeks, and years to come.

Tonight while I was making dinner, I just looked at the chair at the dinner table that my mother had been sitting at while she has been here with us. I grabbed a tea light sized candle off the counter that my daughters had dragged out of the front closet and put it where her plate would have been. I explained that I put it there for Nana because I missed her. Leni, my 3 year old says, “is it Nana’s birthday?” “Why yes, it is Nana’s first birthday in heaven sweetie!” Leni says with a big smile, “Happy Birthday Nana!” I turned the candle to see the scent, Frosted Cupcake, perfect.

I promised myself that when we found out about mom’s tumor, I was going to look for all the sunshine I could. We made the best of the time we had, loved as much as we could, and I fulfilled the promise to her that I would take care of her and not leave her side. As we begin the journey of lives without her, especially with Easter being tomorrow, I know she’s looking down on us, smiling, and holding us each by the hand.

Angel Tree blooming April 20, 2019. Nana’s heavenly birthday.

Inviolable Bond

While my mother and I have had many chapters in our lives together, as she has begun her final days on this earth, the parts of the story are even more loving and vulnerable than those before.

It was last Sunday April 7th, when I was getting mom settled into bed, I felt a change was happening. Saturday had been a tougher day and night for her to manage the pain she was experiencing. Monday April 8th, as soon as I got Neva, my kindergartener on the school bus that morning, I contacted the VNA and said we were ready to move to hospice.

By noon that day, we had transitioned over to the team that is seeing us through the time we have left with her on earth. By 7pm that evening I had the comfort kit, which is a bag full of drugs to help ease pain and discomfort.

Those of you who know my mom, know she is a fighter. She had been fighting through most of the pain leading up to that point because she didn’t want her abilty to feel ‘with’ us impaired by Oxycodone. I can’t say I blame her.

By Tuesday April 9th she was still up with us in the mornings, spending the day with us but I could see she was changing. We adjusted her steroid medication and helped her with Oxycodone and Ativan to keep her comfortable.

Wednesday April 10th, was a tremendous gift. Day 1 of her rally. In reading about those approaching end of life, they refer to a rally period. She was sitting up most of the day, talking in full sentences at times and was making sense. Her disposition has truly been sweet as always, but there seemed to be a greater level happening that day.

Conversely, it was a really tough day for me. I was tired from not sleeping much the night before, and it was a hectic day with my kids. Neva had a award ceremony at school and just the change in schedule, with my kids, lead to a longer, more stressful, close to the “second shift” of the day.

Once my kids were tucked in, it was time for mom and I to make the careful trek down the stairs to her “nana suite”. After I had her in PJs, teethbrushed and tucked in, I started to read on the couch nearby as she was watching TV before she would drift off to sleep. She kept looking over at me, and I back at her. So I got up and knelt by her side.

“Do you need anything?” I asked her.

“I don’t want to……..I don’t want to…..”. Mom, followed with a big mouth exhale. I know this exhale well. I do the same thing myself. She was frustrated. But, I could see in her eyes what she wanted to say. Her eyes filled with tears and a sad smile. I began to cry. I sobbed at her bedside while she stroked and patted the back of my head and neck.

“I hate that this is happening to you, but I promise I will take care of you and be by your side.” It was a relief for both of us. She, in her confusion, had finally figured out that she was dying, and that time was short. As I hugged and kissed her again, I said “I love you so much.” Through teary eyes she said “I love you too.” It was the first time she had been able to say it in weeks. As sad and exhausted as I was, I knew it didn’t matter anymore about what was coming, we were both going to be okay.

Thursday April 11th, we met our new hospice nurse Alicia and social worker Michelle. Mom had another good day, eating with us, laughing at jokes, and getting around with her walker great.

Friday April 12th, got off to a rough start. Our caregiver service was later than normal, and I had been up getting my three kids ready for school and over to my in-laws for the morning because I had a meeting at school. By 10am when I got back from my meeting, I knew things were not well with her. I could see she was in a different place, even with the increase in meds, she was in pain. I got her settled and comfortable by 11am to take Leni my three-year-old to preschool. At that time I asked, “Do you want me to call the priest to come today?”, she nodded yes.

I picked up a fish sandwich, onion rings and a chocolate shake for mom on my way back home. She napped until about 1:30pm. When she woke up we tried to take her to the bathroom before she sat down to eat. It took 30 minutes with myself and the caregiver to help her from my living room to the bathroom. The time had come for the wheelchair. It was her last time on her feet.

She ate half her sandwich and a few onion rings, enjoying them with myself. Leni, and Matty at the table with her. She began to drift off. All her energy was zapped from the struggle of the trip. Typically, she had always wanted to stay up stairs with us and rest on the couch, but that day I asked if she wanted to go down to bed, and she nodded yes. I navigated her out and back into the house through the ramps my father in-law had built the day before. While this was happening, I realized I was about to miss getting Neva off the bus. I phoned my amazing neighbor Jenee, who got her just in time. Moments later I had her safely in the nana suite, settled in the bed. This was the final time she could use words to say “I love you”.

She fell asleep and never really woke up again. By 4:30pm, Fr. Mateus Souza was at the house to give her the Sacrament of the Sick.

That night I had to phone hospice to come over to insert a catheter. Her body was surrendering, whether she wanted it to or not.

Saturday through today, Wednesday, has brought fast changes. She’s been unable to eat or take any regular medication since Sunday. Her abilty to drink fluids has ceased. Her medication dosages and timings are increasing to keep her comfortable. I’ve given her my baby blanket to comfort her, and in the presence of Alicia the hospice nurse, she immediately brought it to her face to smell and cuddle. Those closest to her have said their good byes, and wished for her to be at peace.

While I write this beside her, she is still with us. They say people die as they lived. She’s a fighter, and when she’s ready she will go.

This awful plot twist in my mother’s life that presented itself only in February, has been frought with challenges, and complexities. She was an English teacher after all, something dramatic is only fitting for her, even though it is incredibly tragic. Just like in movies, or literature, story arcs present themselves to the reader or audience typically in the middle and are carried through the plot line. In these final moments, of the final act of my mother’s life, just as in fiction, plot lines are playing out as expected.

And as the final moments of our final chapter are shortly before us, I’ve kept the inviolable promise that we’ve always had to take care of each other. Just as she has been there for me, and me there for her. Through some really tough times we both endured together, and others on our own, there has never been, nor will there ever be anything, or anyone, that could interfere with our love, our unbreakable bond, our commitment to be there for each other. Anyone who truly knows me, or my mother, has always known that.

The support of my husband has been incredible, not just to me, but my mother too. My strength has come from the love for my mother, and knowing Dan is by our side in all of this. As unprepared for this as anyone would be, I have no doubts that I’ve made all the right calls for her. It’s why she trusted me with this when the time came. She knew what she wanted, so, I knew what she wanted. Handling the emotional piece has been hard, but in a way easy, because her wishes, her care, her finding peace is what is at the center. When your bond with someone is that strong, it’s just easy, even when it’s hard. Love, inviolable love.

Here with you through it all mom. And now, my baby blanket will belong to you from now on.

Before it’s time to say good-bye

In February it was evident something was wrong with my mother. Her speech was clear but not making sense. She couldn’t follow a conversation, she was withdrawn. Her short-term memory was clearly impacted as well as her long term. It seemed like a stroke, but it wasn’t. Possibly dementia? But it came on so fast, it didn’t add up.

March 15th she was diagnosed with an Infiltrating Astrocytoma tumor, grade IV. It’s a brain tumor in all parts of her brain, but it’s most heavily impacted in her left frontal lobe. This is the lobe that controls your speech, expression, all things that make you, you. Her mobility is also impacted particularly on her right side, so she is unable to write, use a spoon or fork well, etc. Her problem solving skills are also impaired so she needs full time care.

She can respond at times to simple questions but she can’t always produce the correct response. Some days she is aware of all that is going on, and other days she has spells where she forgets who I am, and also who she is. These spells are happening more frequently as the tumor progresses.

Currently she can still understand what is happening and what is being said to her. Her sense of humor is still intact and hearing her laugh is what brings me the most joy these days. This sadly too will go, and quickly. She recently has started to experience small seizures due to the tumor taking over more parts of her brain.

Last night as I was helping her to bed, I thought of all the people who have reached out and shared quick notes about their memories with my mom. I would love a way to more easily share these with her with the time she has left.

I’ve set up an e-mail via my web page natalie@momcatchingon.com to allow anyone who wants to send me a note or memory about my mother. I’d love to be able to read them to her throughout the day, to make her smile and laugh.

These bittersweet memories are things I find people share with loved ones and family members after that person is gone. During this twilight time that I have left to share with her, it would be amazing to give her those gifts of moments you’ve cherished with her before she leaves us.

Please share my page and e-mail with her friends and our family members who might not have social media accounts.

While she can’t express the gratitude to all of you for your thoughts, prayers, notes, and outreach, I can. And it’s been overwhelming. I’m so amazed at the outpouring of love for her from so many. Those of you I do know, and those I don’t.

Thank you again, and God bless you.

natalie@momcatchingon.com

Xoxo

Natalie

#debandnat #braintumor #braincancer #cancer

Stop Me If You Think You’ve Heard This One Before

When memories that elicit strong feelings from my past, a soundtrack starts. This has happened to me for as long as I can recall. When my mom first got sick, it was almost constant.

Whatever primitive survival response that is, it was full stereo surround sound for me starting back a little over six years ago. Maybe it’s the magic of marrying good story telling with melodies that gets into our minds and bodies to help carry through the hurt or gravity of an emotion, or just helps you pass through it at the time.

Volume on the music has been getting louder since Sunday, and it up a little louder today, as it usually does this time of year. It was back in 2019, that on this day, my mom made the flight back to Boston with us to get answers about what lay ahead. She could not express, but she knew, we knew.

I’ve been waiting for Easter to lap the same week dates as it did the year she passed. The cruelty of losing someone you love near Easter, is most years you grieve the death twice. While I will only make the journey once this year, I know it won’t be easier. I can already tell that the music will be playing louder.

Sneaky Grieving

Five years have passed since my mother passed away. It doesn’t feel like it has been that long for a lot of reasons. It also feels longer for many. 

I was extremely lucky to have a lot of really great support from my family and friends when my mother was sick. People who had lost loved ones were kind and offered words of comfort and support, and the human side of ‘I know what you’re going through.’

After all of the matters of her estate were completed, and tucked away, I really thought I could properly start to begin the process of grieving. The reality was far different.

Just as the sale of my mother’s townhouse was completed, the ‘corona virus’ was just starting to heavily dominate the headlines. I recall on my birthday, my first birthday without her, my friend bringing me a bouquet to tell me she was thinking of me. It was also the day that the worldwide pandemic became official, and the lives of everyone would change that day forever. 

I became part of the bigger crisis that was going on, diverting from my own internal crisis of processing the death of my mother. 

There was plenty of crisis to go around and I sunk right into it. I sent myself into a deep dark place of unknowns, and buried any real feelings, because I had a pandemic to contend with. 

Immersed in the uncertainty I didn’t feel much of anything. Or at least I thought. 

This year, more so than the four that have preceded, I have been grieving her loss more than ever. There has been grief, believe me, but this year it feels much more pronounced. The first wave always hits the week of Easter. The beauty of my mother’s passing on Holy week was just that. She had her surgery biopsy on Ash Wednesday at MGH, and died just before midnight, on Good Friday. Utterly symbolic for a woman, who’s one constant guide throughout her life was her Catholic faith. But the week she passed had other symbols. My father’s birthday, April 17th, and my grandmother’s birthday April 19th. Which was the day she died, despite her official date of death being April 20th. April 20th is also is my mother-in-law’s birthday.  

The tragedy and glory of Easter is the death of Jesus Christ and his ascension into heaven. The same I would say is true of my mother. For me, the hell is that Easter moves every year, so I am always grieving her death during Holy week and then the week of her death.  

Every Easter I work very hard to be cheerful and present in the meaning of the day, and also for my children. This year around 1pm on Easter Sunday, the grief slammed me like high tide. It had been building up. It had been a very busy week for me with events that I had been working to coordinate for a length of time. The event had gone off well, and was great. It had kept my mind busy and distant, suppressing any anticipation about Easter. We had the celebratory meal behind us. I was tired since the kids had been up since 5:30am for their baskets, and we were out of our nice clothes settling in for the rest of Sunday. And then it all crashed on top of me. And it kept crashing, for the rest of the day. Uncontrolled bouts of crying, the ugly crying, not the just struggling at the moment crying. The thoughts could not be held back any longer, and they came out in force.

My children, and Dan were supportive and also sad as well. Seeing me be so sad. The level of those emotions, ones that are about the loss itself, but are always also about much more. The pain of knowing that I was also counting down the days, anticipating this week, to relive the pain. The pain that my mother endured in her life. The pain I endured, and continue to. 

And here I am again, in the week of my mother’s passing. The dates fall the same as they did five years ago, so I think it’s all replaying in my mind more vividly. This week has been busy with camps, playdates, practices, but also some real joy. My father turned 73 this week. While we did not get to be with him to celebrate, we did get to see him via FaceTime celebrating at dinner which was lovely. I also officially became an aunt this week! My brother and sister-in-law welcomed an adorable boy named Benjamin. 

Today while I grieve, I am also reminded of my mother’s journey to develop the life she always wanted, despite years of pain. Her choice to live well for herself. She persevered. 

Reflecting, I feel fortunate that despite our relationship not being perfect, the love was always there. When the grief about things that plagued our relationship surface, I can process them. Even today, I struggle to make them make sense, but I accept that I won’t. They hurt, but I accepted them, I forgave them for us. I forgave my mom for all the hurt, long before she passed, and I made sure in her final days with us that she knew. As a child who endured a lot, she also once was a child who endured a lot. I let her know that I saw her, and I loved her. My way of giving her peace and assurance that ‘we’ were okay. That I was going to be okay. 

The credo, ‘time heals all wounds’, is one I do not subscribe to. Time itself cannot heal. Insight heals. Absence of insight perpetuates pain. Insight perpetuates perseverance through adversity in life. I love you mom. I see you mom. You persevered. We persevered. 

I have done a lot of ugly crying this week. At this point in my journey I realize it’s just part of life. The tears I held back other times , I can’t anymore.

She is ever present in our lives. Yes, I do believe my mother is with us all the time. Not just in a ‘in our hearts’ way, I do believe she is always around us. She shows up with my children all the time. My youngest, who was only 16 months old when she passed, talks about her all the time. He brings home drawings from school with her in them. All of the times the lights flicker.. I know it’s her. It’s a comfort to know she was and always will be here for me, and all of us. While I will always experience waves of grief, I know I will persevere. I know you’re with me. Love you mom. Love you Nana.  XOXOXO

Fourth Holiday 2019

Since my mother passed away in April, there have been three holidays. Easter was the day after she passed, Mother’s Day was two days after her memorial mass in Lincoln, and then Father’s Day just a little over two weeks ago.

Ironically my fourth holiday without my mother is July 4th.

The last three holidays have required extra emotional effort. Effort for a time when you’re supposed to feel happy, cheerful, grateful for all your loved ones. And you are, but that smile and small talk that you force to get out are merely an umbrella that’s trying to keep the sadness that’s raining inside your heart from drenching you completely.

Fourth of July is a holiday for which I do have some good memories of as a child with my mom. Lighting off firecrackers at the dead end of our house, playing with my neighbor friends, and then the parents setting off fireworks in the evening. I was pretty little then. However, I never really had a tradition for the 4th growing up. Since my parents were divorced early in my life, my holidays were always in flux. I always envied families who had cool July 4th traditions. I always just felt like they had so much more fun than I had.

Since meeting my husband, we’ve had consistent July 4th week plans with good friends. The last two years sadly myself and the kids had to stay home due to illness and injury. This is our first year back for the holiday as a family. Truthfully I’m excited and nervous. When you’re in the thick of grieving you’re just afraid you’re going to make everyone around you uncomfortable because you feel like you’re not hiding your sadness well.

In packing up the kids clothes for this week, I found a few red white and blue items my mother had sent for the girls. It made me sad. She always sent them something to wear as she loves buying the girls clothes. I know she’ll be smiling down seeing them wear them since I can’t text her or FaceTime.

Hopefully we can get some sparklers to light with the kids. Mom and I always loved those. I remember her lighting two and twirling around with them like they were batons.

I’m going to do my best to be present and enjoy the time with my family, the friends we love, and try not make everyone uncomfortable. After all, we have a cool tradition, I want to make those fun memories with my kids.

April Fools


Richard Fish would have been 97 years young today! That’s my grandfather, my mother’s father. I have many fond memories of him from my childhood and teen years. Playing at the farm and going to North Loop popcorn days! When I would stay with my grandparents, we would go to church on Saturday nights in Ord, then to the bar after for popcorn and Shirley Temples! It was the 80s..

He was truly someone who I think everyone liked. He had a great sense of humor, and a great heart. Many might say in some ways he was a saint, because well, sometimes my grandmother was a bit of a handful.

After he passed back in July 1997, I remember all the stories I would hear about him. The mischievous ones I enjoy the most. In particular, that when he had started to ‘retire’ from the farm, to get some space from my grandmother he would go to town because he needed oil. This was code for going to my great uncle Bernie’s to share a few beers and laughs mid-day before getting back for dinner. However, he always got oil. The evidence was in his machine shed.

I remember when I was little, he and my grandmother would mistakenly call me Debbie. I did resemble my mother a lot as a child, we have the same eyes. My grandfather’s eyes actually, which I was always told were from his mother Ethel. My daughter Neva has those same eyes. Strangely enough, I see my mother all the time in my daughter’s eyes, more than myself. Leading up to her illness, it was almost like she was the one talking to me, not my daugher.

Recently, my mother has been mistaking my daughter Neva for me. While it is hard for her to get out full sentences ever, twice over the past three days she has said to me. “I just saw Natalie.” “Tell Natalie I see her.”

I have to correct her and tell her that I am Natalie and that is her granddaughter Neva. One would think that even if she wasn’t struggling right now, she would call her Natalie anyway.

Yesterday, we were lucky enough to have our friend and family photographer come by and capture some photos of all of us as family. There will be more to share, but for now here this one that has all of us. Those eyes, show through my daughter Neva on the end.

Happy birthday grandpa. We love you and miss you. Thank you for the beautful eyes.

Family picture with nana. 3.31.2019

Wednesday

It was Wednesday February 27th, in McAllen, TX. That was the day my husband Dan and I brought my mother to Massachusetts with us to find out what was going on in her brain. I remember sitting with her in those two bulk head seats of our first leg to Dallas before Boston. She was confused, but at ease. The song by DJDS “No Pain” was playing. I remember thinking it was ironic, because she hadn’t been in any pain. Sitting there, cold from the air conditioning blowing on her, she looked at me and said with a nervous smile “just dying”. I tried to ignore the comment, but I couldn’t.

Thursday February 28th, she had appointment at Mass General Hospital with a very accomplished neurosurgeon, Dr. Brian Nahed. He was kind, and soft spoken. He walked us through the MRI images we had provided. In the visit we had learned more than we had from the series of dumbfounded physicians in south Texas, which was “it’s in all parts of her brain, so operating isn’t feasible.” While cancer wasn’t diagnosed, it certainly was evident that was what it was.

Friday March 1st, Dr. Jorg Dietrich, also a very kind, and thoughtful physician met with my mother, husband and I. After he performed neurological tests, he then asked me to speak with him privately. In his office, he told me he thought what he was seeing was very rare, and serious. A biopsy would be needed to confirm, but, likely show this to be untreatable with radiation or chemotherapy. It was the moment I had been dreading, but was preparing to hear based upon the words from Dr. Nahed the day before. I fought back my tears, got composed to go back into the exam room with my mother to try not to alarm her of the news I had just received.

Monday March 4th we checked my mother into MGH for pre-op and Tuesday March 5th she successfully had brain biopsy by Dr. Nahed. Friday March 8th we transitioned her to rehab near our home while we were waiting for the biopsy results. Friday March 15th we received her diagnosis of Invasive Astrocytoma Grade IV. Monday March 18th, Dr. Shih at MGH confirmed that treatment courses would not improve her quality of life or reverse the effects the tumor was having on her speech, memory, and movement.

Wednesday March 20th, the day I checked her out of rehab and brought her home to live with us. Also, the day I posted to ‘our world’ on social media about what mom was facing.

And, that brings me to today, Wednesday March 27th. One month since this journey to Massachusetts started for her. The journey to get answers, and a plan.

It has been the most ‘normal’ Wednesday I’ve had so far, but it’s the new normal. I said to my husband Dan today, “I’m not feeling great, just not normal.” After a month, I think it’s starting to become my reality.

Mom, February 27, 2019 McAllen, TX